{"id":949,"date":"2023-06-08T16:10:40","date_gmt":"2023-06-08T14:10:40","guid":{"rendered":"https:\/\/www.chu-tours.fr\/pemr-cvl\/?page_id=949"},"modified":"2024-06-06T14:38:18","modified_gmt":"2024-06-06T12:38:18","slug":"partenaires-et-ressources-utiles","status":"publish","type":"page","link":"https:\/\/www.chu-tours.fr\/pemr-cvl\/partenaires-et-ressources-utiles\/","title":{"rendered":"Partenaires et ressources utiles"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"949\" class=\"elementor elementor-949\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-6bfa0b8c elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"6bfa0b8c\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-3c213175\" data-id=\"3c213175\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-2708ec89 elementor-widget elementor-widget-text-editor\" data-id=\"2708ec89\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 15-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<blockquote><p>La Plateforme d\u2019Expertise Maladies Rares a parmi ses missions de conseiller, d\u2019orienter, d\u2019apporter son appui et son soutien aux patients et leurs proches, en collaborant avec les partenaires locaux et r\u00e9gionaux tels que l\u2019<strong>Alliance Maladies Rares<\/strong>, <strong>l\u2019Equipe Relais Handicaps Rares<\/strong> (ERHR), les Maisons D\u00e9partementales Des Personnes Handicap\u00e9es (<strong>MDPH<\/strong>), les diff\u00e9rentes associations tr\u00e8s actives et impliqu\u00e9es dans ce soutien.<\/p><p>Elle contribue \u00e9galement \u00e0 cr\u00e9er ou mettre \u00e0 disposition des outils et ressources utiles, et ce, en collaboration avec les personnes ressources et les partenaires m\u00e9dico-sociaux pour am\u00e9liorer le parcours des patients et la connaissance des diff\u00e9rents dispositifs par tous.<\/p><\/blockquote>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-d623842 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"d623842\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-c486066\" data-id=\"c486066\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-ff8f8ed elementor-widget elementor-widget-global elementor-global-1287 elementor-widget-html\" data-id=\"ff8f8ed\" data-element_type=\"widget\" data-widget_type=\"html.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<!--fermeture accord\u00e9on -->\r\n<script> \r\n\tjQuery(document).ready(function($) { \r\n\tvar delay = 100; setTimeout(function() { \r\n\t$('.elementor-tab-title').removeClass('elementor-active');\r\n\t$('.elementor-tab-content').css('display', 'none'); }, delay); \r\n\t}); \r\n<\/script>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-15df1fe elementor-widget elementor-widget-accordion\" data-id=\"15df1fe\" data-element_type=\"widget\" data-widget_type=\"accordion.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 15-07-2024 *\/\n.elementor-accordion{text-align:start}.elementor-accordion .elementor-accordion-item{border:1px solid #d5d8dc}.elementor-accordion .elementor-accordion-item+.elementor-accordion-item{border-top:none}.elementor-accordion .elementor-tab-title{margin:0;padding:15px 20px;font-weight:700;line-height:1;cursor:pointer;outline:none}.elementor-accordion .elementor-tab-title .elementor-accordion-icon{display:inline-block;width:1.5em}.elementor-accordion .elementor-tab-title .elementor-accordion-icon svg{width:1em;height:1em}.elementor-accordion .elementor-tab-title .elementor-accordion-icon.elementor-accordion-icon-right{float:right;text-align:right}.elementor-accordion .elementor-tab-title .elementor-accordion-icon.elementor-accordion-icon-left{float:left;text-align:left}.elementor-accordion .elementor-tab-title .elementor-accordion-icon .elementor-accordion-icon-closed{display:block}.elementor-accordion .elementor-tab-title .elementor-accordion-icon .elementor-accordion-icon-opened,.elementor-accordion .elementor-tab-title.elementor-active .elementor-accordion-icon-closed{display:none}.elementor-accordion .elementor-tab-title.elementor-active .elementor-accordion-icon-opened{display:block}.elementor-accordion .elementor-tab-content{display:none;padding:15px 20px;border-top:1px solid #d5d8dc}@media (max-width:767px){.elementor-accordion .elementor-tab-title{padding:12px 15px}.elementor-accordion .elementor-tab-title .elementor-accordion-icon{width:1.2em}.elementor-accordion .elementor-tab-content{padding:7px 15px}}.e-con-inner>.elementor-widget-accordion,.e-con>.elementor-widget-accordion{width:var(--container-widget-width);--flex-grow:var(--container-widget-flex-grow)}<\/style>\t\t<div class=\"elementor-accordion\">\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-2291\" class=\"elementor-tab-title\" data-tab=\"1\" role=\"button\" aria-controls=\"elementor-tab-content-2291\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><i class=\"fas fa-plus\"><\/i><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><i class=\"fas fa-minus\"><\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">Alliance maladies rares<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-2291\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"1\" role=\"region\" aria-labelledby=\"elementor-tab-title-2291\"><p><strong>L\u2019ALLIANCE MALADIES RARES<\/strong> apporte son soutien \u00e0 la PEMR CVL\u00a0:<\/p><ul><li>a particip\u00e9 \u00e0 la co-construction du projet<\/li><li>contribue aux liens avec associations et usagers<\/li><li>est repr\u00e9sent\u00e9e au sein de son comit\u00e9 de pilotage afin de convenir d\u2019objectifs et actions compl\u00e9mentaires<\/li><\/ul><p>&gt;&gt; <a href=\"https:\/\/alliance-maladies-rares.org\/\" target=\"_blank\" rel=\"noopener\">Pour en savoir +<\/a><\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-2292\" class=\"elementor-tab-title\" data-tab=\"2\" role=\"button\" aria-controls=\"elementor-tab-content-2292\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><i class=\"fas fa-plus\"><\/i><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><i class=\"fas fa-minus\"><\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">\u00c9quipe Relais Handicaps Rares (ERHR)<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-2292\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"2\" role=\"region\" aria-labelledby=\"elementor-tab-title-2292\"><p>La PEMR CVL a re\u00e7u un soutien de <strong>l\u2019Equipe Relais Handicaps Rares Centre Val de Loire (ERHR)<\/strong>, tant lors de la construction du projet que pour sa mise en \u0153uvre au regard de leurs objectifs communs et missions compl\u00e9mentaires (partage d&#8217;exp\u00e9rience, participations conjointes \u00e0 des manifestations diverses, relais d\u2019information aupr\u00e8s des personnes concern\u00e9es et des aides mutuelles \u00e0 propos de demandes de patients sur des probl\u00e9matiques personnelles\u2026).<\/p><p><strong>L\u2019ERHR CVL<\/strong> est repr\u00e9sent\u00e9e au sein du comit\u00e9 de pilotage de la PEMR-CVL.<\/p><p>&gt;&gt; <a href=\"https:\/\/centrevaldeloire.erhr.fr\/\" target=\"_blank\" rel=\"noopener\">Pour en savoir +<\/a><\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-2293\" class=\"elementor-tab-title\" data-tab=\"3\" role=\"button\" aria-controls=\"elementor-tab-content-2293\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><i class=\"fas fa-plus\"><\/i><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><i class=\"fas fa-minus\"><\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">Maison D\u00e9partementale Des Personnes Handicap\u00e9es (MDPH)<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-2293\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"3\" role=\"region\" aria-labelledby=\"elementor-tab-title-2293\">Pour les maladies rares source de handicaps, le remplissage du dossier en vue d\u2019obtenir des aides mat\u00e9rielles et financi\u00e8res aupr\u00e8s de la MDPH doit \u00eatre minutieux. Des liens entre la PEMR-CVL et les MDPH de la r\u00e9gion ont \u00e9t\u00e9 \u00e9tablis afin d\u2019am\u00e9liorer le parcours des patients dans ce domaine.\n<ul>\n \t<li><a href=\"https:\/\/mdphenligne.cnsa.fr\" target=\"_blank\" rel=\"noopener\">MDPH\u00a0<\/a><\/li>\n \t<li>Vid\u00e9o &#8220;Aide au remplissage du dossier MDPH&#8221; :<\/li>\n<\/ul>\n&nbsp;\n<table class=\" aligncenter\" style=\"width: 100%; border-collapse: collapse;\" border=\"0\" cellspacing=\"0\" cellpadding=\"0\">\n<tbody>\n<tr>\n<td style=\"width: 10%;\"><\/td>\n<td style=\"width: 80%; text-align: center;\"><iframe height=\"314\" src=\"\/\/www.youtube.com\/embed\/UvniaAJtwTg\" width=\"560\"><\/iframe><\/td>\n<td style=\"width: 10%;\"><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p style=\"text-align: center;\"><\/p><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-2294\" class=\"elementor-tab-title\" data-tab=\"4\" role=\"button\" aria-controls=\"elementor-tab-content-2294\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><i class=\"fas fa-plus\"><\/i><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><i class=\"fas fa-minus\"><\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">Autres partenaires r\u00e9gionaux<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-2294\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"4\" role=\"region\" aria-labelledby=\"elementor-tab-title-2294\"><ul><li><strong>Le R\u00e9seau Neuro Centre<\/strong> est consacr\u00e9 \u00e0 l\u2019accompagnement des patients atteints de Scl\u00e9rose En Plaques (SEP) ou de Scl\u00e9rose Lat\u00e9rale Amyotrophique (SLA) en r\u00e9gion Centre Val de Loire :<\/li><\/ul><p style=\"padding-left: 40px;\">&gt;&gt; <a href=\"https:\/\/www.reseauneurocentre.fr\" target=\"_blank\" rel=\"noopener\">https:\/\/www.reseauneurocentre.fr<\/a><\/p><ul><li><strong>Le P\u00f4le Ressources Handicap<\/strong> a pour vocation de <strong>favoriser l\u2019inclusion des enfants<\/strong> <strong>de la naissance \u00e0 17 ans,<\/strong> en situation de handicap et\/ou avec des besoins sp\u00e9cifiques dans les <strong>structures d\u2019accueil de droit commun <\/strong>de la petite enfance.<ul><li><strong>P\u00f4le Ressources Handicap 18 <\/strong>: <a href=\"https:\/\/www.parents-reaap18.fr\/Pole-Ressources-18.html\" target=\"_blank\" rel=\"noopener\">https:\/\/www.parents-reaap18.fr\/Pole-Ressources-18.html<\/a><\/li><li><strong>P\u00f4le Ressources Handicap 28 <\/strong>: <a href=\"https:\/\/www.lespep28.org\/erh\/\" target=\"_blank\" rel=\"noopener\">https:\/\/www.lespep28.org\/erh\/<\/a><\/li><li><strong>P\u00f4le Ressources Handicap 36\u00a0:<\/strong> <a href=\"https:\/\/www.adpep36.fr\" target=\"_blank\" rel=\"noopener\">https:\/\/www.adpep36.fr<\/a><\/li><li><strong>P\u00f4le Ressources Handicap 37 <\/strong>: <a href=\"https:\/\/pole-ressources-handicap37.fr\" target=\"_blank\" rel=\"noopener\">https:\/\/pole-ressources-handicap37.fr<\/a><\/li><li><strong>P\u00f4le Ressources Handicap 41 <\/strong>: <a href=\"http:\/\/www.adapei41.com\/tous-les-etablissements\/pole-ressources-handicap-41\" target=\"_blank\" rel=\"noopener\">http:\/\/www.adapei41.com\/tous-les-etablissements\/pole-ressources-handicap-41<\/a><\/li><li><strong>P\u00f4le Ressources Handicap 45\u00a0<\/strong>: <a href=\"https:\/\/prh45.fr\/\" target=\"_blank\" rel=\"noopener\">https:\/\/prh45.fr\/<\/a><\/li><\/ul><\/li><\/ul><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-2295\" class=\"elementor-tab-title\" data-tab=\"5\" role=\"button\" aria-controls=\"elementor-tab-content-2295\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><i class=\"fas fa-plus\"><\/i><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><i class=\"fas fa-minus\"><\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">Maladies Rares infos services  <\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-2295\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"5\" role=\"region\" aria-labelledby=\"elementor-tab-title-2295\"><p>Maladies Rares Infos Services est un service d&#8217;information et de soutien qui permet aux personnes malades et leur entourage d\u2019\u00eatre \u00e9cout\u00e9s, inform\u00e9s, orient\u00e9s. Il offre \u00e9galement un espace de partage avec d\u2019autres patients et familles par le biais de forums leur permettant de t\u00e9moigner et \u00e9changer.<\/p><ul><li><a href=\"https:\/\/www.maladiesraresinfo.org\" target=\"_blank\" rel=\"noopener\"><u>Site Maladies Rares Infos Services<\/u><\/a><\/li><\/ul><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-2296\" class=\"elementor-tab-title\" data-tab=\"6\" role=\"button\" aria-controls=\"elementor-tab-content-2296\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><i class=\"fas fa-plus\"><\/i><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><i class=\"fas fa-minus\"><\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">AFM t\u00e9l\u00e9thon  <\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-2296\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"6\" role=\"region\" aria-labelledby=\"elementor-tab-title-2296\"><ul><li><a href=\"https:\/\/www.afm-telethon.fr\/fr\/vivre-avec-la-maladie\/l-afm-telethon-m-accompagne\/lafm-telethon-pres-de-chez-moi\" target=\"_blank\" rel=\"noopener\">Site\u00a0AFM T\u00e9l\u00e9thon<\/a><\/li><\/ul><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-7924802 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"7924802\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-ea1657c\" data-id=\"ea1657c\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-89bce23 elementor-widget elementor-widget-heading\" data-id=\"89bce23\" data-element_type=\"widget\" data-widget_type=\"heading.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 15-07-2024 *\/\n.elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}<\/style><h2 class=\"elementor-heading-title elementor-size-default\">Documents utiles<\/h2>\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-882e0d6 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"882e0d6\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-a95b832\" data-id=\"a95b832\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-86c202b elementor-cta--valign-middle elementor-cta--skin-classic elementor-animated-content elementor-bg-transform elementor-bg-transform-zoom-in elementor-widget elementor-widget-call-to-action\" data-id=\"86c202b\" data-element_type=\"widget\" data-widget_type=\"call-to-action.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<link rel=\"stylesheet\" href=\"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/plugins\/elementor-pro\/assets\/css\/widget-call-to-action.min.css?ver=1721048726\">\t\t<div class=\"elementor-cta\">\n\t\t\t\t\t\t\t<div class=\"elementor-cta__content\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-cta__description elementor-cta__content-item elementor-content-item\">\n\t\t\t\t\t\tPlaquette ERHR<br \/>Centre-Val de Loire\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-cta__button-wrapper elementor-cta__content-item elementor-content-item \">\n\t\t\t\t\t<a class=\"elementor-cta__button elementor-button elementor-size-\" href=\"\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2024\/06\/Plaquette-de-presentation-ERHR-Centre-Val-de-Loire-1.pdf\" target=\"_blank\">\n\t\t\t\t\t\tT\u00e9l\u00e9chargez le document\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-ribbon\">\n\t\t\t\t<div class=\"elementor-ribbon-inner\">PDF<\/div>\n\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-da20541\" data-id=\"da20541\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-99137ef elementor-cta--valign-middle elementor-cta--skin-classic elementor-animated-content elementor-bg-transform elementor-bg-transform-zoom-in elementor-widget elementor-widget-call-to-action\" data-id=\"99137ef\" data-element_type=\"widget\" data-widget_type=\"call-to-action.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-cta\">\n\t\t\t\t\t\t\t<div class=\"elementor-cta__content\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-cta__description elementor-cta__content-item elementor-content-item\">\n\t\t\t\t\t\tVivre avec une maladie rare en France<br \/>Aides et prestations\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-cta__button-wrapper elementor-cta__content-item elementor-content-item \">\n\t\t\t\t\t<a class=\"elementor-cta__button elementor-button elementor-size-\" href=\"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2024\/06\/Vivre_avec_une_maladie_rare_en_France-042024.pdf\" target=\"_blank\">\n\t\t\t\t\t\tT\u00e9l\u00e9chargez le document\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-ribbon\">\n\t\t\t\t<div class=\"elementor-ribbon-inner\">PDF<\/div>\n\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-inner-section elementor-element elementor-element-7eb00b4 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"7eb00b4\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-9608c37\" data-id=\"9608c37\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-b87505c elementor-cta--valign-middle elementor-cta--skin-classic elementor-animated-content elementor-bg-transform elementor-bg-transform-zoom-in elementor-widget elementor-widget-call-to-action\" data-id=\"b87505c\" data-element_type=\"widget\" data-widget_type=\"call-to-action.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-cta\">\n\t\t\t\t\t\t\t<div class=\"elementor-cta__content\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-cta__description elementor-cta__content-item elementor-content-item\">\n\t\t\t\t\t\tConsentement de la personne en situation<br \/>de handicap\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-cta__button-wrapper elementor-cta__content-item elementor-content-item \">\n\t\t\t\t\t<a class=\"elementor-cta__button elementor-button elementor-size-\" href=\"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2023\/06\/2.8-3-livret_consentement_psh_pour_diffusion.pdf\" target=\"_blank\">\n\t\t\t\t\t\tT\u00e9l\u00e9chargez le document\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-ribbon\">\n\t\t\t\t<div class=\"elementor-ribbon-inner\">PDF<\/div>\n\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t<div class=\"elementor-column elementor-col-50 elementor-inner-column elementor-element elementor-element-7c10b8a\" data-id=\"7c10b8a\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-0917eb9 elementor-cta--valign-middle elementor-cta--skin-classic elementor-animated-content elementor-bg-transform elementor-bg-transform-zoom-in elementor-widget elementor-widget-call-to-action\" data-id=\"0917eb9\" data-element_type=\"widget\" data-widget_type=\"call-to-action.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-cta\">\n\t\t\t\t\t\t\t<div class=\"elementor-cta__content\">\n\t\t\t\t\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-cta__description elementor-cta__content-item elementor-content-item\">\n\t\t\t\t\t\tFlyer Maladies Rares Info Services <br \/>\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t\t\t\t\t\t<div class=\"elementor-cta__button-wrapper elementor-cta__content-item elementor-content-item \">\n\t\t\t\t\t<a class=\"elementor-cta__button elementor-button elementor-size-\" href=\"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2023\/06\/Maladies-rares-infos-services_2023_flyer_web.pdf\" target=\"_blank\">\n\t\t\t\t\t\tT\u00e9l\u00e9chargez le document\t\t\t\t\t<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<div class=\"elementor-ribbon\">\n\t\t\t\t<div class=\"elementor-ribbon-inner\">PDF<\/div>\n\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-60818f1 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"60818f1\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-f63c710\" data-id=\"f63c710\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-10bf836 elementor-widget elementor-widget-accordion\" data-id=\"10bf836\" data-element_type=\"widget\" data-widget_type=\"accordion.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t<div class=\"elementor-accordion\">\n\t\t\t\t\t\t\t<div class=\"elementor-accordion-item\">\n\t\t\t\t\t<div id=\"elementor-tab-title-1751\" class=\"elementor-tab-title\" data-tab=\"1\" role=\"button\" aria-controls=\"elementor-tab-content-1751\" aria-expanded=\"false\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon elementor-accordion-icon-left\" aria-hidden=\"true\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-closed\"><i class=\"fas fa-plus\"><\/i><\/span>\n\t\t\t\t\t\t\t\t<span class=\"elementor-accordion-icon-opened\"><i class=\"fas fa-minus\"><\/i><\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/span>\n\t\t\t\t\t\t\t\t\t\t\t\t<a class=\"elementor-accordion-title\" tabindex=\"0\">Liens utiles vers les associations<\/a>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t<div id=\"elementor-tab-content-1751\" class=\"elementor-tab-content elementor-clearfix\" data-tab=\"1\" role=\"region\" aria-labelledby=\"elementor-tab-title-1751\"><ul><li><strong>AMR : ALLIANCE MALADIES RARES<\/strong> : <a href=\"https:\/\/www.alliance-maladies-rares.org\/\" target=\"_blank\" rel=\"noopener\">https:\/\/www.alliance-maladies-rares.org\/<\/a><\/li><li><strong>EURORDIS : la voix des patients atteints de Maladies rares <\/strong>: <a href=\"https:\/\/www.eurordis.org\/fr\" target=\"_blank\" rel=\"noopener\">https:\/\/www.eurordis.org\/fr<\/a><\/li><li><strong>RARE CONNECT<\/strong> : <a href=\"https:\/\/www.rareconnect.org\/fr\" target=\"_blank\" rel=\"noopener\">https:\/\/www.rareconnect.org\/fr<\/a><\/li><\/ul><\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>La Plateforme d\u2019Expertise Maladies Rares a parmi ses missions de conseiller, d\u2019orienter, d\u2019apporter son appui et son soutien aux patients et leurs proches, en collaborant avec les partenaires locaux et r\u00e9gionaux tels que l\u2019Alliance Maladies Rares, l\u2019Equipe Relais Handicaps Rares (ERHR), les Maisons D\u00e9partementales Des Personnes Handicap\u00e9es (MDPH), les diff\u00e9rentes associations tr\u00e8s actives et impliqu\u00e9es [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_seopress_robots_primary_cat":"","_seopress_titles_title":"Prise en charge. Partenaires et ressources utiles.","_seopress_titles_desc":"La Plateforme d\u2019Expertise Maladies Rares a parmi ses missions de conseiller, d\u2019orienter, d\u2019apporter son appui et son soutien aux patients et leurs proches, en collaborant avec les partenaires locaux et r\u00e9gionaux tels que l\u2019Alliance Maladies Rares, l\u2019Equipe Relais Handicaps Rares (ERHR), les Maisons D\u00e9partementales Des Personnes Handicap\u00e9es (MDPH), les diff\u00e9rentes associations tr\u00e8s actives et impliqu\u00e9es dans ce soutien.","_seopress_robots_index":"","_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"_genesis_hide_title":false,"_genesis_hide_breadcrumbs":false,"_genesis_hide_singular_image":false,"_genesis_hide_footer_widgets":false,"_genesis_custom_body_class":"","_genesis_custom_post_class":"","_genesis_layout":"","footnotes":""},"publishpress_future_action":{"enabled":false,"date":"2026-06-01 03:14:20","action":"change-status","newStatus":"draft","terms":[],"taxonomy":""},"_links":{"self":[{"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/pages\/949"}],"collection":[{"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/comments?post=949"}],"version-history":[{"count":74,"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/pages\/949\/revisions"}],"predecessor-version":[{"id":2427,"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/pages\/949\/revisions\/2427"}],"wp:attachment":[{"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/media?parent=949"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}