{"id":4026,"date":"2026-09-17T15:30:01","date_gmt":"2026-09-17T13:30:01","guid":{"rendered":"https:\/\/www.chu-tours.fr\/pemr-cvl\/?page_id=4026"},"modified":"2026-09-17T15:33:58","modified_gmt":"2026-09-17T13:33:58","slug":"journee-annuelle-pemr-centre-val-de-loire-colloque-regional-fondation-maladies-rares","status":"publish","type":"page","link":"https:\/\/www.chu-tours.fr\/pemr-cvl\/journee-annuelle-pemr-centre-val-de-loire-colloque-regional-fondation-maladies-rares\/","title":{"rendered":"Journ\u00e9e annuelle PEMR Centre-Val de Loire \/ Colloque r\u00e9gional Fondation Maladies Rares"},"content":{"rendered":"\t\t<div data-elementor-type=\"wp-page\" data-elementor-id=\"4026\" class=\"elementor elementor-4026\" data-elementor-post-type=\"page\">\n\t\t\t\t\t\t<section class=\"elementor-section elementor-top-section elementor-element elementor-element-eee4769 elementor-section-boxed elementor-section-height-default elementor-section-height-default\" data-id=\"eee4769\" data-element_type=\"section\">\n\t\t\t\t\t\t<div class=\"elementor-container elementor-column-gap-default\">\n\t\t\t\t\t<div class=\"elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-d0f5e8a\" data-id=\"d0f5e8a\" data-element_type=\"column\">\n\t\t\t<div class=\"elementor-widget-wrap elementor-element-populated\">\n\t\t\t\t\t\t<div class=\"elementor-element elementor-element-193b73e elementor-widget elementor-widget-text-editor\" data-id=\"193b73e\" data-element_type=\"widget\" data-widget_type=\"text-editor.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 15-07-2024 *\/\n.elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}<\/style>\t\t\t\t<p>La <strong>Plateforme d\u2019Expertise Maladies Rares Centre-Val de Loire<\/strong>\u00a0a le plaisir de vous annoncer la tenue de sa <strong>journ\u00e9e annuelle<\/strong>, organis\u00e9e conjointement avec le <strong>Colloque r\u00e9gional de la Fondation Maladies Rares<\/strong>.<\/p><p>\ud83d\udcc5 <span style=\"color: #ff0000;\">Mercredi <strong>9 d\u00e9cembre 2026<\/strong><\/span><\/p><p>\ud83d\udccd <strong>Facult\u00e9 de M\u00e9decine<\/strong> de Tours<\/p><p>\ud83d\udd64 De <strong>9h30 <\/strong>\u00e0 <strong>16h30<\/strong><\/p><p>Cette journ\u00e9e sera consacr\u00e9e \u00e0 plusieurs th\u00e9matiques au c\u0153ur des enjeux des maladies rares :<\/p><ul><li><strong>Recherches biom\u00e9dicales (diagnostic et m\u00e9canismes des maladies rares)<\/strong><\/li><li><strong>Recherches en sciences humaines et sociales et cliniques<\/strong><\/li><li><strong>Recherche participative<\/strong><\/li><\/ul><p>Elle r\u00e9unira diff\u00e9rents acteurs de la communaut\u00e9 maladies rares : <strong>cliniciens, chercheurs, repr\u00e9sentants d\u2019associations de patients et acteurs du secteur industriel<\/strong>.<\/p><p>Au programme : <strong>conf\u00e9rences, tables rondes et sessions posters<\/strong>, favorisant les \u00e9changes et le partage d\u2019exp\u00e9riences entre les diff\u00e9rents acteurs du domaine.<\/p><p>Le <strong>programme d\u00e9taill\u00e9 sera communiqu\u00e9 prochainement<\/strong>.<\/p><p>\ud83d\udc49 <strong>Les inscriptions sont ouvertes aux professionnels via le lien suivant : <\/strong><a href=\"https:\/\/fondation-maladiesrares.org\/evenement\/colloque-maladies-rares-regional-centre-val-de-loire\/\" target=\"_blank\" rel=\"noopener\" data-auth=\"NotApplicable\"><strong>lien d\u2019inscription<\/strong><\/a><\/p><p>Nous vous invitons d\u00e8s \u00e0 pr\u00e9sent \u00e0 <strong>r\u00e9server la date<\/strong>\u00a0dans vos agendas et esp\u00e9rons vous retrouver nombreux \u00e0 cette occasion.<\/p><p><strong>L\u2019\u00e9quipe de la Plateforme d\u2019Expertise Maladies Rares Centre-Val de Loire<\/strong><\/p>\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-83850fb elementor-widget elementor-widget-image\" data-id=\"83850fb\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t<style>\/*! elementor - v3.23.0 - 15-07-2024 *\/\n.elementor-widget-image{text-align:center}.elementor-widget-image a{display:inline-block}.elementor-widget-image a img[src$=\".svg\"]{width:48px}.elementor-widget-image img{vertical-align:middle;display:inline-block}<\/style>\t\t\t\t\t\t\t\t\t\t\t<a href=\"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2026\/09\/Colloque-CVL-09122026.jpg\" data-elementor-open-lightbox=\"yes\" data-elementor-lightbox-title=\"Colloque-CVL-09122026\" data-e-action-hash=\"#elementor-action%3Aaction%3Dlightbox%26settings%3DeyJpZCI6NDAyNCwidXJsIjoiaHR0cHM6XC9cL3d3dy5jaHUtdG91cnMuZnJcL3BlbXItY3ZsXC93cC1jb250ZW50XC91cGxvYWRzXC9zaXRlc1wvMTVcLzIwMjZcLzA5XC9Db2xsb3F1ZS1DVkwtMDkxMjIwMjYuanBnIn0%3D\">\n\t\t\t\t\t\t\t<img fetchpriority=\"high\" decoding=\"async\" width=\"768\" height=\"768\" src=\"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2026\/09\/Colloque-CVL-09122026.jpg\" class=\"attachment-full size-full wp-image-4024\" alt=\"Journ\u00e9e annuelle PEMR Centre-Val de Loire \/ Colloque r\u00e9gional Fondation Maladies Rares - 9 d\u00e9cembre 2026\" srcset=\"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2026\/09\/Colloque-CVL-09122026.jpg 768w, https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2026\/09\/Colloque-CVL-09122026-300x300.jpg 300w, https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2026\/09\/Colloque-CVL-09122026-150x150.jpg 150w, https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2026\/09\/Colloque-CVL-09122026-40x40.jpg 40w\" sizes=\"(max-width: 768px) 100vw, 768px\" \/>\t\t\t\t\t\t\t\t<\/a>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t<div class=\"elementor-element elementor-element-f9b91e3 elementor-widget elementor-widget-image\" data-id=\"f9b91e3\" data-element_type=\"widget\" data-widget_type=\"image.default\">\n\t\t\t\t<div class=\"elementor-widget-container\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<img decoding=\"async\" width=\"1774\" height=\"887\" src=\"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2026\/09\/JA-PEMR-CVL-09122026.jpg\" class=\"attachment-full size-full wp-image-4025\" alt=\"Journ\u00e9e annuelle PEMR Centre-Val de Loire \/ Colloque r\u00e9gional Fondation Maladies Rares - 9 d\u00e9cembre 2026\" srcset=\"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2026\/09\/JA-PEMR-CVL-09122026.jpg 1774w, https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2026\/09\/JA-PEMR-CVL-09122026-300x150.jpg 300w, https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2026\/09\/JA-PEMR-CVL-09122026-1024x512.jpg 1024w, https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2026\/09\/JA-PEMR-CVL-09122026-768x384.jpg 768w, https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-content\/uploads\/sites\/15\/2026\/09\/JA-PEMR-CVL-09122026-1536x768.jpg 1536w\" sizes=\"(max-width: 1774px) 100vw, 1774px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t<\/section>\n\t\t\t\t<\/div>\n\t\t","protected":false},"excerpt":{"rendered":"<p>La Plateforme d\u2019Expertise Maladies Rares Centre-Val de Loire\u00a0a le plaisir de vous annoncer la tenue de sa journ\u00e9e annuelle, organis\u00e9e conjointement avec le Colloque r\u00e9gional de la Fondation Maladies Rares. \ud83d\udcc5 Mercredi 9 d\u00e9cembre 2026 \ud83d\udccd Facult\u00e9 de M\u00e9decine de Tours \ud83d\udd64 De 9h30 \u00e0 16h30 Cette journ\u00e9e sera consacr\u00e9e \u00e0 plusieurs th\u00e9matiques au c\u0153ur [&hellip;]<\/p>\n","protected":false},"author":4,"featured_media":4023,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_seopress_robots_primary_cat":"","_seopress_titles_title":"","_seopress_titles_desc":"","_seopress_robots_index":"","_exactmetrics_skip_tracking":false,"_exactmetrics_sitenote_active":false,"_exactmetrics_sitenote_note":"","_exactmetrics_sitenote_category":0,"_genesis_hide_title":false,"_genesis_hide_breadcrumbs":false,"_genesis_hide_singular_image":false,"_genesis_hide_footer_widgets":false,"_genesis_custom_body_class":"","_genesis_custom_post_class":"","_genesis_layout":"","footnotes":""},"publishpress_future_action":{"enabled":false,"date":"2026-10-16 19:28:10","action":"change-status","newStatus":"draft","terms":[],"taxonomy":""},"_links":{"self":[{"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/pages\/4026"}],"collection":[{"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/users\/4"}],"replies":[{"embeddable":true,"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/comments?post=4026"}],"version-history":[{"count":4,"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/pages\/4026\/revisions"}],"predecessor-version":[{"id":4032,"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/pages\/4026\/revisions\/4032"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/media\/4023"}],"wp:attachment":[{"href":"https:\/\/www.chu-tours.fr\/pemr-cvl\/wp-json\/wp\/v2\/media?parent=4026"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}